We’re all part of the Fabry family. Here’s who you’ll meet:
Mollie wants to be perceived as an equal in her corporate world, so she speaks up for herself and others. See how.
Others fuel me to get out there and share my story.
Courtnay walked from the East Coast to the West Coast in the Fabry’s Walkabout and became a role model through social media.
Don’t let Fabry set your limits.
Cheryl, a longtime supporter for the newly diagnosed, and her daughter Michelle talk about their daily lives with Fabry.
My mom has taught me to fight for myself.
When Michael, the father figure, and his daughter were diagnosed with Fabry, the entire family was at a loss for what to do next—until they learned to unite together.
Because you can’t do this alone, we support each other.
Raises awareness of Fabry disease and provides support to patients and their families.
Organizes Fabry disease-related programs and shares updated info on Fabry management.
Provides information about living with Fabry disease and runs Fabry projects.
Help those with Fabry to actively connect online.
Get the latest information about Fabry disease.Get Updates