We’re all part of the Fabry family. Here’s who you’ll meet:
Get advice on advocating for yourself in the workplace
Mollie wants to be perceived as an equal in her corporate world, so she speaks up for herself and others. See how.
Others fuel me to get out there and share my story.
Learn how to raise awareness for this rare disease
Courtnay walked from the East Coast to the West Coast in the Fabry’s Walkabout and became a role model through social media.
Don’t let Fabry set your limits.
See ways to involve family in management
Cheryl, a longtime supporter for the newly diagnosed, and her daughter Michelle talk about their daily lives with Fabry.
My mom has taught me to fight for myself.
Find inspiration from a Fabry family
When Michael, the father figure, and his daughter were diagnosed with Fabry, the entire family was at a loss for what to do next—until they learned to unite together.
Because you can’t do this alone, we support each other.
Rare, but not alone: Fabry disease support groups are ready to help
Fabry Support & Information Group
Raises awareness of Fabry disease and provides support to patients and their families.
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The National Fabry Disease Foundation
Organizes Fabry disease-related programs and shares updated info on Fabry management.
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Fabry International Network (FIN)
Provides information about living with Fabry disease and runs Fabry projects.
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Facebook Groups & Pages
Help those with Fabry to actively connect online.
Create more connections
Share FabryConnect resources
Join the Community
Get the latest information about Fabry disease.
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