There are many Fabry disease-related support and education groups. They can help you learn more about Fabry disease, connect you to others with the disease, and keep you updated about the latest developments in Fabry disease. Click on the links below to visit some of these sites.
This organization is committed to raising awareness about Fabry disease and its symptoms. It provides support and encouragement to patients and their families.Visit Site
Learn about Fabry disease-related programs and projects, take advantage of the various resources available through the site, and get the latest information about living with and managing Fabry disease.Visit Site
Learn about Fabry disease-related programs and projects, take advantage of the various resources available, and get the latest information about living with and managing Fabry disease.Visit Site
National Institutes of Health (NIH)
Get the latest information about treatment, clinical trials, publications, and Fabry-related organizations and support groups.
Learn about the many ways genetics plays a part of your life and learn more about Fabry disease.
National Organization for Rare Disorders (NORD)
This website provides information for patients and their families, help with medication access, and opportunities to connect with others and to get involved.
Global Genes: Allies in Rare Diseases
Global Genes is a nonprofit organization on a mission to connect, empower and inspire the rare disease community.
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